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A Lovely Weekend at the Turn of the Weather

Laird's Blog -

We got to flip a calendar page this past weekend and I thought I'd share with readers some of what I indulged in from COB Friday until Monday morning.  Sort of a day-in-the-life of cancer survivor awaiting transplant therapy.

o  Today, for the first time since last fall, the entire state of Minnesota was depicted in yellow on the US weather map, indicating that the highs today would be at least 60 degrees statewide. Woohoo! Can leaves be far behind?

Susan and I got a sneak preview of spring Saturday when we drove down to Stone Lake (about 90 miles south of Duluth) to spend the day with good friends, Ray & Elsie Martin. They had leaves down there, and the green in the winter wheat was mouthwateringly verdant. (To be fair, the air temperatures were still chilly and we put the fireplace to good use after dinner. So there's still considerable warming to accomplish before going crazy with Japanese eggplants in the garden.)

o  Yesterday afternoon, Susan and I attended a surprise birthday party for a friend named Nelson. It was held outdoors at a marina in Superior (which worked out OK if you were in the lee of the building, bathed in the late afternoon sun). In addition to meeting gobs of Susan's friends and local connections, they served a catered sit-down meal centered around pasties and a delicious cole slaw. 

There is nothing more evocative of place than characteristic food, and pasties are inextricably linked to the North Woods for me. I last wrote about them the last time I enjoyed a pasty (Catching the Ferry in 2010) when I spent a couple weeks vacationing on Drummond Island off the Upper Peninsula, and it all came back to me with the first bite. Finely chopped potatoes, carrots, and onions commingled with meat shreds in a savory pastry shell. Yum!

o  Since taking the plunge back in 1999, my favorite recreational pastime has been playing duplicate bridge. To be sure, I enjoy many things and love game playing generally, but nothing beats bridge at the duplicate level. I used to play regularly (once a week) at duplicate club in Kirksville when I lived in northeast MO, but I've only managed to play one time (last August, while visiting Sandhill) since leaving MO last June.

Of course, mostly this got set aside in recent moths to attend to my health, but I'm well enough now to indulge in occasional card playing and I was happy when Susan suggested that we play bridge with Ray & Elsie Saturday afternoon. While we only got in about 10 hands it has great fun (especially for Susan—the birthday girl—who was dealt one terrific hand after another) and I had the chance to play a couple of slam hands, the best one being off an ace with the king of trumps lying offside. When the defense failed to cash their ace on the opening lead I was able to wriggle out of losing it by establishing a side suit, and my 12th trick came from playing the seven of spades (a side suit) after roughing out the defense's 10. Very satisfying.

Susan plays bridge on Thursdays in a teaching class and I've been invited to go with her this coming week to see where I might fit into the Duluth duplicate scene.

o  Over the weekend, Susan and I started mapping out our support schedule for my coming stay in Rochester (in conjunction with my stem-cell transplant at the Mayo Clinic, starting July 12). We are blessed to have four different folks who have volunteered to do a shift while I'm in Rochester and take over the role of primary caregiver for a few days, giving Susan a break. In all, I've been told to expect a stay of six weeks, and it will be great for Susan to have regular breaks.

While she and I like being together, there are limits. Planning for breaks at the outset creates a more humane schedule. Here's what the support person will be asked to provide: 
—Escort me to and from Transplant House to Mayo's for daily testing and treatment.
—Be my cheerleading squad, helping me stay in good spirits while I cope with the heavy duty chemotherapy.
—Encourage me to get regular exercise  (seeing how quickly my body atrophied after three weeks in the hospital in Feb, I am determined to do what I can to not suffer as much physical deterioration this summer).
—Cajole me to drink enough liquids (three quarts daily).
—Get me to eat enough protein (despite the expectation that my appetite will be diminished).

This should leave plenty of time for visiting, working crossword puzzles, reading novels, and listening to Giants games on radio (streamed via my laptop). Who knows, maybe I can find four for bridge among the transient members of Transplant House.

o  Gradually, I've been upping the ante on social engagements as my strength improves. Susan and I attended a local performance of the Broadway musical, 42nd Street, Friday evening; we drove to Stone Lake WI for the day on Saturday; and we attended a birthday party Sunday afternoon. While I don't intend to be busy like that every day, it's nice to know I can handle it.

In fact, despite the increased activity level, I was able to navigate the entire weekend without once relying on extra medication to see me through. It's nice to have additional spring in my step right as there's additional spring in the air.

Vancouverites aim to create co-housing space within a condo tower - The Globe and Mail

Cohousing News from Google -

The Globe and Mail

Vancouverites aim to create co-housing space within a condo tower
The Globe and Mail
They're calling it “co-housing lite,” and the members believe it's the first of its kind in North America, or even Europe, which is where traditional co-housing started. Co-founding member James Chamberlain, a vice-principal at an inner-city school ...

MM in the Spotlight

Laird's Blog -

This past week I finished reading Salman Rushdie's Satanic Verses, the book that sparked enough controversy among orthodox Muslims that it resulted in the Ayatollah Khomeini issuing a fatwa calling for Rushdie's death in 1989. (Talk about literary criticism!) Although the British government stepped in to provide the author with round-the-clock protection and Rushdie is still with us today, there remains serious tension over freedom of speech in connection with the novel, and its examination of the Muslim faith in connection with British immigration.

Satanic Verses was written in the style of magical realism (a la Gabriel Garcia Márquez' classic, One Hundred Years of Solitude, published in 1967). I loved the free flowing nature of the narrative as it follows the improbable journeys of two protagonists, Gibreel Farishta (a Bollywood superstar) and Saladin Chamcha (a voiceover virtuoso), after they are the sole survivors of a terrorist attack on their jumbo jet.

Nearing the end of the book, I brought it with me to my infusion therapy session Monday, and was taken by surprise with this opening sentence to the final subsection:

Eighteen months after his heart attack, Saladin Chamcha took to the air again in response to the telegraphed news that his father was in the terminal stages of multiple myeloma, a systemic cancer of the bone marrow that was "100 per cent fatal"…

Three months ago I'd never heard if multiple myeloma (MM), and now it's everywhere. While I mused briefly over how closely I needed to be following that particular plot development, you have to shake your head at the creative ways that art can imitate life.

One of the fascinating things about MM is that it's a corner of the cancer world (roughly one per cent of cancer today shows up as multiple myeloma) about which there is a lot of progress being made in how to treat it. What had been "100 per cent fatal" 30 years ago is not the same sure thing today. The stem-cell transplant procedure that I'll have done in July offers real hope of containing the cancer and giving me several more years of good quality living. 

At the very worst it gives me something tangible and constructive to point towards, which is how my oncologists and I are approaching it. In turn, this helps me maintain an up-tempo attitude as I gear up for this summer's transplant. It allows me to be more thoroughly present for the limbo I am floating in right now, where, for the next 10 weeks, I'll be able to engage in regular email traffic, stay current with paperwork, attend concerts, and otherwise come across as relatively normal—even though I have little idea how much boost I'll garner from the transplant procedure. We won't know until we do it.

While none of this changes my overall fate (after all, we all die eventually), it definitely spices up my immediate prospects, and I am thankful for the gift of March through mid-July—this time out of time during which my pain has been manageable and there is ample room to read, reflect, write, and enjoy relationships. Life is good. No matter what happens with the transplant, I get the time I have right now.

While multiple myeloma is commonly abbreviated as "MM" in the medical literature, I laugh whenever I see that designation. Not because it evokes multi-colored chocolate pellets, but because "MM" conjures up Marilyn Monroe for me—just about as different an image from cancer as I could imagine. Life can be funny that way.
• • •This afternoon I get my dialysis port removed (although I never did dialysis, I had a catheter inserted into my jugular vein to facilitate blood draws and infusion therapy). That semi-permanent installation meant I was able to avoid all manner of needle insertions, but at an increased risk of infection. Now that my body's reaction to chemotherapy has stabilized, the scales have tipped the other way and my oncologist is more worried about infection than speedy infusions. 

As an additional plus, after the catheter is removed Susan and I won't have to be quite so careful in bed, worried about what equipment we might accidentally knock around while cuddling.

To celebrate, this evening we'll attend a reprised performance of 42nd Street, the Broadway musical. Tomorrow, Susan's birthday, we'll drive to Stone Lake WI and spend the day with good friends, Ray & Elsie Martin, helping them open up their cabin for the summer.

Life is good.

Capitol Hill's cohousing pioneers are ready to move in on 12th Ave - CHS Capitol Hill Seattle

Cohousing News from Google -

CHS Capitol Hill Seattle

Capitol Hill's cohousing pioneers are ready to move in on 12th Ave
CHS Capitol Hill Seattle
The 12th Ave cohousing development isn't a traditional cooperative. CHUC residents are their own developers. While tenants in a cooperative or condo building have to eat the costs of a developer's profit, CHUC residents say there are keeping their ...

Threefold Architects wins planning for Kensington co-housing - Architects' Journal

Cohousing News from Google -

Architects' Journal

Threefold Architects wins planning for Kensington co-housing
Architects' Journal
The practice has worked with 18 existing households on the scheme which it believes is 'one of the largest cohousing refurbishments in London'. It worked with the residents to form an association, develop a brief and create a design which 'creates a ...

A drawing shows the location for a proposed cohousing development in Union Corners. - Madison.com

Cohousing News from Google -


A drawing shows the location for a proposed cohousing development in Union Corners.
The Union Corners group is participating in this year's National Cohousing Open House Day from noon to 4 p.m. on Saturday along with Madison's three established communities. Information on the Union Corners development will be available at Arboretum ...

The Wild Cooperative

New listings on ic.org -

Website: https://wildcooperative.wordpress.com City: Crawford State: Colorado Zip: 81415 Contact Email: wildcooperative@hotmail.com Content Phone: Contant Name:

April: a Tough Month Along the North Shore

Laird's Blog -

Mondays are my day for blood work, to make sure I'm on the right course with my chemotherapy.

After five hours of running the gauntlet of appointments, here's what's going on in my world:

o  The wind picked up last night and started blowing hard out of the Northeast. As the long axis of Lake Superior is angled from southwest to northeast at Duluth, that direction afforded the water all night to build up a head of steam as it crashed this morning into Duluth Harbor. Think 39-degree spray with waves in excess of six feet. Bracing. There is an ore ship hove to outside the harbor, unwilling to run the shipping canal under such raucous conditions.

Susan and I took an extra 30 minutes on the way home from the hospital and sat in a parking lot watching (feeling?) the waves crash ashore.

o  More good numbers from blood tests: my last light chain number had shrunk to 50, and all others were trending in the right direction as well. Thus, as hoped, my medical forecast is good news: steady as she goes into my July 12 date for a stem-cell transplant at the Mayo Clinic.

Weight, Weight, Don't Tell Me…
As a regular feature of my Monday check-ins, I get weighed. While you might think this is just SOP with doctor visits, it was a feature of concern in my health profile. I had lost about 50 pounds from the onset of my lower back pain in October 2014, and I was down to 150 pounds in early April—while I started this odyssey overweight, enough was enough. The doctors need my weight to stabilize as a precondition for the stem-cell transplant, and I didn't want to slide down any further either.

To be sure, I was interested in losing weight anyway. Now, battling cancer it seems an especially poor idea to be asking my beleaguered body to portage around extra poundage (particularly unproductive plasma cells), and I am motivated to find a new baseline. In this regard, April has been a great month. I've manged to keep my weight in the 150-56 lb range all month. Yippee. (And if I can keep it there the rest of my life, I'm happy with that.)

To get there I made a few subtle yet significant lifestyle adjustments:
—I've cut back significantly on between meal snacking.
—I try to not skip any meals, though I'll go light on lunch if anything.
—I satisfy myself with single servings and resist taking seconds.
—With the modest exception of pushing myself somewhat to eat something at every meal, I generally listen to my body and don't eat a thing if I'm not hungry or not inspired by the food.

In executing this plan it has helped enormously that Susan is a great cook. On my journey toward achieving a resemblance of domestic partnership I have a long way to go before I'm, pardon the expression, carrying my weight in the house, but Susan has been patient and we're both excited by my continued recovery from my February as a poster child for basket cases. Now that I've mostly got personal care needs under personal control, engaging on the domestic front is next up.

In the last fortnight I've taken over full responsibility for seeing that all of my pills and supplements make it to my mouth in a timely manner, and this morning I agreed to take over as chief coffeemaker. Can dicing onions be for behind?

o  As you'd expect, Dr Alakied was happy to see my numbers, and we enjoyed an easy flowing connection today. As it turned out, he had been having a not-so-easy week, where he had to tell patients bad news more often than good, and he shared with us that that's the hardest part of the job—when he's done his best, it hasn't worked, and he has to tell the patients that it's the end of the line what help they can get from medical intervention. It sucks.

It helps him a lot to have patients like me, who have a positive attitude and are succeeding beyond expectations in response to the treatments he recommends. Like a lot of us, it's hard to sustain a positive disposition when you're not seeing enough bounce from your efforts. Thus, my good news helped counterbalance an otherwise tough week.

It was highly satisfying to me to know that at least in a small way I was able to give back to Dr Alakied after he's given so much to me. A tender quid pro quo.

As a bonus, Dr Alakied took the time to explain in greater detail how my form of myeloma is different from more prevalent kinds and why that necessitates paying attention to different markers and recommending a protocol that's tailored to my specific case. As Susan's employment history included a stint as a research lab assistant at the University of Minnesota, she had a working understanding of some of the biochemistry, and it was a fascinating tutorial, complete with graphics.

o  Though April is appearing to be the lost month for spring weather along the North Shore (much as February was my lost month for cognitive engagement), we may be able to catch something nice right at the tail end. It turns out that this Saturday will be Susan's birthday and we're hoping to celebrate by joining friends Ray Martin and Elsie Myers as they open their cabin near Stone Lake for the summer.
When we get there Saturday morning we'll see whether the timing was prescient or wistful thinking.

(And if you think the local residents have been long suffering, the Minnesota Wild and Twins haven't had such a hot month either.)

Of course, even if April holds out until the bitter end, May is not far ahead and I expect a big boost when we flip the calendar on Sunday.

Shine On Village

New listings on ic.org -

Website: http://shineonvillage.com City: Palatka State: Florida Zip: 32177 Contact Email: bradfordge@gmail.com Content Phone: Contant Name: Brad

Workshops, presentations scheduled for Nevada City's arts cohousing project - The Union of Grass Valley

Cohousing News from Google -

The Union of Grass Valley

Workshops, presentations scheduled for Nevada City's arts cohousing project
The Union of Grass Valley
The organizers of a multi-unit cohousing project in Nevada City have a new site — and a series of presentations scheduled to run in the coming weeks for the public to gather more information on the planned neighborhood. “We worked hard for two years ...

Workshops, presentations scheduled for Nevada City's arts cohousing project - The Union of Grass Valley

Cohousing News from Google -

Workshops, presentations scheduled for Nevada City's arts cohousing project
The Union of Grass Valley
The organizers of a multi-unit cohousing project in Nevada City have a new site — and a series of presentations scheduled to run in the coming weeks for the public to gather more information on the planned neighborhood. “We worked hard for two years ...


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